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Understanding the Personal Independence Payment (PIP) Process

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PIP application process

What is Personal Independence Payment?

Personal Independence Payment (PIP) is a benefit in the UK designed to help people with extra living costs if they have a long-term physical or mental health condition or disability. It is available to people aged 16 and over

PIP has two parts:

  1. Daily Living: Helps with everyday tasks like preparing food, washing, dressing, and managing money.
  2. Mobility: Helps with getting around, like walking or planning routes

You can receive PIP whether you are working or not, and it is not affected by your income or savings

Eligibility

You can check if you’re eligible for PIP via the government website, https://www.gov.uk/pip/eligibility

How to Apply

PIP is currently rolling out a online application you can check if this is available in your area – https://www.apply-for-pip.dwp.gov.uk/eligibility/check-if-eligible

You can start a claim for PIP via post to Freepost DWP PIP 1

However, it may take longer to receive a decision as they will request that you fill out a personal details form before they can send you the claim form.

You can also start a claim via phone, we would advise setting aside around an hour for this as you may have to wait in a queue, you can have someone to support you with this call however they will request your consent to speak to them

Telephone: 0800 917 2222 Textphone: 0800 917 7777

If you cannot hear or speak on the phone, Relay UK can support Relay UK: 18001 then 0800 917 2222 British Sign Language (BSL) video relay service if you’re on a computer – find out how to use the service on mobile or tablet Calling from abroad: +44 191 218 7766 Monday to Friday, 8am to 5pm

What will happen

They will request the following personal details:

· Your contact details, for example telephone number

· Your date of birth

· Your National Insurance number, if you have one (you can find this on letters about tax, pensions and benefits)

· Your bank or building society account number and sort code

· Your doctor or health worker’s name, address and telephone number

· Dates and addresses for any time you’ve spent in a care home or hospital

· Dates for any time you spent abroad for more than 4 weeks at a time, and the countries you visited

 

Once you have completed this you will be sent a form to fill out detailing your condition/disability, MAIN can provide you with an evidence letter to be sent back alongside this, please give at least two weeks notice for this. This support is for people who are accessing MAIN services.

When completing the form

  • Keep in mind how your condition impacts you on your worst day.
  • If your condition is a hidden disability, ensure your expand on your answers
  • Get someone you know or professional to look over your answers
  • There is a lot of guidance on Citizen’s Advice website

You will be given a deadline for returning the form however if you need more time you need to contact PIP to request this.

You may then require an assessment this may be in person, over the phone or via video call, following this a decision will be made and you will be sent a letter explaining it.

Should you not be happy with the decision you have the right to appeal. There is more guidance on the appeal process here 

 

 

Universal Credit logo on screen

Applying for Universal Credit

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Applying for Universal Credit

You can apply for universal credit online; you will have 28 days to complete the application form so it is best to have all the information you need at hand.

You can check if you are eligible for Universal credit – https://www.gov.uk/universal-credit/eligibility

You can also make an appointment with Citizen’s Advice to discuss making a claim as they may be able to support you.

If you live with a partner, you must both submit a claim even if your partner does not meet the eligibility requirements as the outcome will depend on your household income and savings, you must apply separately and link the accounts later.

 

To apply for Universal Credit you will need:

· Your bank, building society or credit union account details

· An email address

· Access to a phone

You will also need proof of your identity:

· Driving licence

· Passport

· Debit or credit card

· Payslip or P60

 

If you don’t have these you will need to contact the helpline or citizens advice may be able to support

· Universal Credit helpline

· Telephone: 0800 328 5644

· Welsh language: 0800 328 1744

· Relay UK (if you cannot hear or speak on the phone): 18001 then 0800 328 5644

· British Sign Language (BSL) video relay service if you’re on a computer – find out how to use the service on mobile or tablet

· Textphone: 0800 328 1344

· Monday to Friday, 8am to 6pm

 

You will also need to provide information about:

· Your housing, for example how much rent you pay

· Your earnings, for example payslips

· Your National Insurance number, if you have one

· Other benefits you get

· Any disability or health condition that affects your work

· How much you pay for childcare if you want help with childcare costs

· Your savings and any investments, like shares or a property that you rent out

 

You may be asked to attend an appointment with the universal credit team if they need more information or if they cannot verify your identity, this may be over the phone or in person at a jobcentre.

You will need to agree to a ‘claimant commitment’ before receiving any universal credit, you will have a meeting usually at the jobcentre to discuss this, you may be required to look for work or to look to increase your current income however this depends on the information provided and whether they assess you as being able to work, you will be supported by a ‘work coach’ if you are required to look for work and may need to attend appointments.

You will have an online account to manage your claim where you can access messages.

MAIN can provide an evidence letter to support your application for universal credit if you are accessing support. Please give at least 2 weeks notice for this.

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Getting a disabled bus pass

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Getting a disabled bus pass

Having a bus pass entitles you to free travel on all standard bus services in England after 9.30am on Monday to Friday and all day Saturday, Sunday and public holidays. Special night-time services and other special services may be excluded.

Before 9.30am on Monday to Friday:

· Travel for 50p when you get on at a stop within the boundary of your local Council

· Ordinary fares normally apply when you get on anywhere else

· Usually include any local Park and Rides

You may also get half-price travel on certain local train services

 

How to apply

You can apply for a disabled person’s bus pass via post, online or in person

Go to your local council website or google ‘apply for a disabled bus pass in [council name]’

MAIN can provide an evidence letter to support your application – please give at least two weeks notice for this. You will need to be accessing our services to receive an evidence letter.

You will need to provide proof of eligibility for a bus pass:

· Proof that you live in County Durham, such as a copy of a bank statement, utility bill or council tax letter

· Proof of your condition or qualifying benefit

 

Sending your application

You can send your bus pass application by post, online, or in person.

Post –

Send the form alongside proof of eligibility and a passport sized photograph

Online –

Scan or take a photo of your form, proof of eligibility and take a passport style photo, you can upload this to the document submission form,

In Person –

Most council’s have a  ‘Customer access point’ where you can arrange an appointment or drop in- remember to bring your form and proof of eligibility.

 

Leah Graham staff photo

Spotlight: Introducing Leah Graham, Our Facilitator for Pre and Post Autism Diagnostic Services

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Spotlight: Introducing Leah Graham, Our Facilitator for Pre and Post Autism Diagnostic Services

We are excited to introduce Leah Graham, our dedicated Facilitator focusing on our Pre and Post Autism Diagnostic Service across Tees Valley. As a charity, we are committed to offering 1-1 bespoke support to anyone aged 16+ who requires assistance in understanding their diagnosis, learning about themselves, and managing anxiety, emotions, or anger.

Our Services

Leah and our team aim to help individuals access various services, including health, employment, and education. We support the development of tools such as communication profiles and reasonable adjustments, or simply provide a friendly person to listen to your current concerns while offering guidance and support from a knowledgeable viewpoint.

Our Experience

MAIN has delivered a post-diagnostic support service across County Durham for over 10 years, and we are thrilled to extend this support to our home ground in Tees Valley. Our goal is to ensure that everyone has the resources and support they need to thrive.

About Leah Graham

Leah Graham staff photo

Leah is still currently a facilitator for our Guisborough clubs and has also been the first point of contact for our mental health bookable sessions in partnership with SJOG from September 2024 to March 2025. Leah has excellent knowledge, patience, and is passionate about making sure individuals are heard and have the appropriate support in place.

If you or someone you know could benefit from our services, please get in touch with us. We’re here to help!

If you or someone you know could benefit from our services, please get in touch with us. We’re here to help!

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Empowering Our Community with Individualised Alert Cards

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Empowering Our Community with Individualised Alert Cards

At MAIN, we understand the importance of effective communication, especially in moments of stress or confusion. Our individualised Alert Cards are designed to help communicate your needs when you require assistance, particularly if you become overwhelmed, non-verbal, or confused. Here are some stories from individuals who have benefited from our Alert Cards:

Male, Age 44

After leaving work due to workplace bullying, he has been unable to work for seven years. Keen to re-enter the workforce but hesitant to leave the family home, he found confidence in the Alert Card. He shared that having something to speak for him in challenging situations made him feel more secure. Before Christmas, he ventured out twice, feeling more confident knowing the card was in his pocket.

Female, Age 26

She requested an Alert Card for her first holiday with her boyfriend, almost 200 miles away. Worried about the trip but determined to go, she thought the card would be useful if they got separated. She went on the trip and was absolutely fine, grateful for the card even though she didn’t need to use it.

Male, Age 32

Having been in trouble with the police many times before his diagnosis, he reflected that his life might have taken a different path had he been diagnosed in childhood. He felt that if he ever got into trouble again, the Alert Card would help ensure he was treated in a way that wouldn’t lead to a crisis. Although he hasn’t needed to use it, he knows it’s there and has encouraged others to get something similar.

Male, Age 17

He requested an Alert Card to quickly express his needs during times of struggle. He chose to wear the card on a lanyard when out, making it easier for people to understand that he might be require support and enabling him to access it quickly when needed.

 

Here are some examples of why some Individuals have requested the card previously wanting to explain:

  • Changes to their tone of voice
  • To communicate they may sound angry, when they are actually anxious
  • To inform people they need time to process information and respond
  • To explain they may become non-verbal at times of stress
  • To explain they behave in an unusual way i.e. just leave the room, shut down, no eye contact

 

 

You can order your own alert card here at our shop – alternatively you can all can complete over the phone and pick up from our centre

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Case Studies: Support from Our Durham Team

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Case Studies: Support from Our Durham Team

Education

Female, 20’s: This client had an upcoming exam in a new location and was feeling anxious about it. MAIN assisted her in thinking of and requesting reasonable adjustments for her exam. Additionally, we helped her plan and adjust to her travels, easing her worries.

Employment

Male, 30’s: This client was struggling to accept and cope with proposed changes to his work rota. MAIN discussed reasonable adjustments and strategies to help him process the changes. He found it difficult to process all the information and felt overwhelmed. After his appointment, he felt better about the changes.

Male, 20’s: This client was experiencing stress at work. MAIN explored the reasons behind his stress and found it was related to sensory issues and working memory. We offered advice on reasonable adjustments and methods to manage task changes at work.

Family Health

Female, 30’s: This client had a bad experience at the hospital, where a doctor accused her of alcohol abuse and addiction. She explained that she was stimming in the waiting room due to high stress levels. MAIN provided her with a healthcare passport, which helped hospital staff understand her situation better.

Communication Profile

Female, 30’s: This client was nervous about going on holiday and worried about airport security, as she struggles to communicate when stressed. MAIN provided a communication profile to help convey her needs if she became unable to do so herself. This made her feel more confident while traveling.

Alert Card and Evidence Letters

Female, 50’s: This client was stressed about her PIP renewal. MAIN helped by writing an evidence letter detailing the struggles she faces in daily life due to being autistic. This support made her feel much better about the application process.

These case studies highlight the diverse support our Durham Team provides to help individuals navigate various challenges in education, employment, health, and daily life

 

 

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Guide for Applying for a Blue Badge

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Guide for Applying for a Blue Badge

The Blue Badge scheme, which began recognizing hidden disabilities in 2019, can be a great help. When applying, consider focusing on the following areas:

Areas not directly addressed in the application that is worth adding:

  1. Sensory Concerns:
    • How sensory issues impact the ability to focus.
    • Recognizing dangers, such as reversing cars.
    • The need for support to walk safely in a car park.
    • Balancing issues and overall risk.
  2. Impact of Going into the Community:
    • The physical, emotional, and mental toll of being in the community.
    • How these impacts manifest once back home.
  3. Impact of Current Parking:
    • The longer distance to walk to the shop.
    • Increased risks due to the distance.
    • Difficulty in getting to a safe space, like the car.
  4. Independence:
    • Whether the individual needs to have their hand held.
    • The risk of running away.
    • The impact on others.
    • The need for extra space to fasten them in, etc.

Here are some tips to help you with a successful Blue Badge application:

  1. Be Detailed and Specific:
    • Provide clear examples of how the disability affects daily life.
    • Describe specific incidents or challenges faced due to the disability.
  2. Use Medical Evidence:
    • Include letters or reports from healthcare professionals that support your application.
    • Ensure the evidence is recent and relevant to the application
  3. Provide a Comprehensive Picture:
    • Paint a full picture of the challenges faced, including sensory concerns, independence issues, and the overall impact on daily life.
    • Be honest and thorough in your descriptions.

Applying

You can apply online here

By addressing these points in your application, you can provide a comprehensive picture of the challenges faced and the necessity of a Blue Badge. Good luck with your application! If you have any more questions or need further assistance, feel free to ask.

 

Spotlight: Our Teesside Coordinators

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Our Coordinators at Teesside: Leanne & Tracey

Leanne CrockettTracey Elgey

Leanne and Tracey, based at our Finlay Cooper Centre, are dedicated to coordinating our children and adult services across Tees Valley. They are here to listen to any concerns you may have and can signpost you to relevant services. If you are accessing MAIN, they ensure that your child, young adult, or yourself are understood and supported.

Leanne and Tracey will introduce themselves and explain all of our services that might interest you. If you decide to access our services, you will receive a welcome pack and complete some initial assessments. This helps us get to know the individual better and includes a care plan and risk assessment.

Both Leanne and Tracey supervise our Facilitator and PA staff to ensure that MAIN provides a welcoming, accessible, and fun environment for everyone

If you would like to speak to Leanne or Tracey to discuss our services or support please call on 01642 608012 or email here

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Feedback: Louise’s Experience with MAIN’s Support
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Feedback : County Durham Post Diagnostic Support Service

I feel it very important to try and document just how vital a service MAIN have been to both me and my brother since we came under their care beginning in 2020.

For the past five years MAIN have been a constant, supportive presence in both of our lives, and for us to know that MAIN have been there to help us navigate the difficulties and challenges we both face in daily life has not only been a  reassurance, it has been an absolute lifeline, especially as my brother and I are isolated within our community (an experience sadly not uncommon for Autistic people) and can no longer receive the much needed help and support of our parents who have both now passed away. Without MAIN my brother and I would be entirely on our own and we would be struggling to cope.

Since 2020 MAIN has provided my brother and I with the most understanding we have ever experienced in our lives because they are an Autism-specific service who understand the numerous and unique challenges Autistic people face in everyday life. They help us bridge the gap between ourselves and a society that is in no way catered towards our needs or experiences. For example – neither my brother nor I can properly access healthcare without the support and direct intervention of our respective support workers from MAIN. With our consent, our support workers from MAIN have contacted our GP and opticians for us, as we both struggle greatly with using the telephone due to our Autistic communication and sensory and information processing problems. This is just one example of how society is often inaccessible to us. Of how its systems, environments and ways of doing things are frequently unsuited to the needs of Autistic people. A phone call may seem a simple thing to most people, but it is a Herculean, frequently unsurmountable obstacle for my brother and I.

The fact that MAIN is an organisation dedicated to helping Autistic individuals is a crucial factor. In so many areas of life and society it is apparent that most people, while often well-meaning, have no real understanding of what Autism is and how it affects people – even healthcare providers often display a surprising, and frequently upsetting, lack of awareness.

A diagnosis of Autism provides you with an answer as to why you struggle as you do, but it doesn’t give you any indication of how to move forward. Ongoing post diagnostic support is absolutely vital in this regard. Again, I can’t adequately express how important a lifeline it is. I don’t mean to sound in any way melodramatic when I say this, but without the ongoing post diagnostic support from MAIN that we have both received since 2020 I am sure my brother and I would have been in a much worse place, and in the case of my brother, who has additional physical and mental health issues alongside his Autism I am not entirely sure he would still be alive. Or, at the very least, hospitalised.

I have consistently counted my brother and I lucky that Durham County Council has been willing to engage MAIN to provide Autistic people in the county with ongoing post diagnostic support. I know in some areas of the country no such service exists. Autistic people are effectively abandoned upon diagnosis, which is a terrible state of affairs.

I know as a council you will have many demands on your resources, but I feel it imperative to point out that because of the unique challenges Autistic people experience, our needs cannot be met by another, more generic “one size fits all”, service, who are not properly Autism aware or Autism specific. We cannot just “make do”  with another generic service as perhaps a non-Autistic person could. So many Autistic people find it difficult or impossible to access much-needed help because generally services do not properly understand the Autistic experience. We therefore are quite isolated, which frequently makes for an unhappy and unhealthy existence.

We need continued, specialist, Autism-specific support. Local mental health services have often let Autistic people down because they do not fully understand the complexities of the experiences of Autistic people. This is perhaps understandable to some degree as Autism is not a mental health issue it is a neurological developmental disability. But, because we cannot always adjust to their way of doing things they let us go. I know this from personal experience as I was discharged from mental health services a few years ago (against my wishes and without consultation) as they could not accommodate my Autistic needs. Thereby effectively laying the blame for failure at my feet. Thankfully, I was receiving help and support from MAIN by this point, but I fear how things would have been if I hadn’t. Because of this negative experience with local mental health services, I would be extremely reluctant to engage with them in future as I fear the same thing would happen again. This is another reason why the ongoing support of MAIN is vital to us.

Change and uncertainty are two factors that are very distressing and difficult to cope with for Autistic people. We need the security of familiarity, stability, continuity and routine to function in our daily lives and, once again, MAIN are absolutely vital to that.

Especially so to those people who “fall through the cracks” as I believe the saying goes – those who are deemed not eligible for social care but who still need support. I understand the need for criteria in order to assess support needs, but so many people do not meet that elevated criteria and yet they still need support to live healthy, fulfilling lives. MAIN are vital to people like this.

I don’t know if it is appropriate to single out individuals for praise, but everyone my brother and I have had dealings with from MAIN have been kind, patient, supportive, professional people – Lewis Meadley, Katherine Palmer, Pippa Robinson, Melissa Mallin/Massey, Kimberley Field especially. They all are a credit to the organisation and vital to mine and my brother’s wellbeing.

I haven’t been able to express my thoughts as well as I would have liked but I hope that some of what I have written will  be useful to you.

Thank you for all the help you have given me and my brother over the past five years. I don’t know what we would have done without it,

Louise

 

If you would like to learn more about our County Durham Service please look here or contact us here 

If you live in the Tees Valley area please contact us here 

Pancake day finished product

Spotlight: Aaron

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Pancake Day at the Pathway to Independence Centre

Aaron had an amazing Pancake Day at the Pathway to Independence Centre! He started by buying all the necessary ingredients from the shop. Once back, he washed his hands thoroughly to get ready for the fun.

Aaron made the pancake mixture all by himself, showing great independence. He was very careful while cooking the pancakes in the pan. When it came time to flip them, he exclaimed “hoopla!” with excitement.

For decoration, Aaron chose chocolate spread and sprinkles, making his pancakes look as good as they tasted. After enjoying his delicious creation, he described them as “very yummy” and “delicious.”

To wrap up his Pancake Day, Aaron took responsibility for cleaning up. He washed all the pots, cleaned the worktops, and even mopped the floor, ensuring the kitchen was spotless.

Great job, Aaron!

Pancake day cooking pancakesPancake day toppings Pancake day finished product  Pancake Day- washing up Pancake day- cleaning up

If you would like to learn more about our PA Support Services please contact us here