Tag Archive for: Adult support

Many Heartfelt Thanks to UK Pods Ltd

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A Heartfelt Thank You to UK Pods Ltd

At MAIN, we are continually reminded of the incredible generosity and kindness that surrounds us and today, we want to extend our deepest gratitude to UK Pods Ltd for their extraordinary act of giving.

Thanks to their generous donation of a POD, our organisation has been blessed with an incredible support. This gift is  a symbol of community, compassion, and the belief that when we come together, we can create meaningful change.

To UK Pods Ltd—thank you, thank you, thank you. Your support reminds us just how lucky we are to be part of such an amazing community. Your kindness shines brightly and encourages us to keep doing what we do, knowing we are not alone.

From everyone at MAIN, thank you again for believing in us and for helping us grow.

With heartfelt appreciation,
The MAIN Team

MAIN Chat Logo Icon

Chat MAIN – Online Support Group

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Introducing Our New Online Support Group for Autistic Adults: Chat MAIN

We’re excited to announce the launch of Chat MAIN – a brand new, friendly and supportive online group for autistic and neurodiverse adults, starting on the 29th October 2025.

Chat MAIN is a space to connect, share experiences, and build friendships in a relaxed, understanding environment. Whether you’re looking to meet others with similar experiences, find a sense of community, or simply enjoy a friendly chat, this group is for you.

Chat MAIN Logo

What is Chat MAIN?

Chat MAIN is an informal, online meet-up group designed specifically for autistic adults. We know that navigating adulthood with autism or other neurodivergent experiences can sometimes feel isolating. That’s why this group offers a safe and welcoming space to talk, listen, and feel supported.

The group will be hosted by friendly MAIN team members who understand the importance of creating a calm and respectful atmosphere. You can choose how much (or how little) you want to join in, there’s no pressure to talk if you’d prefer just to listen.

Who is it for?

This group is open to autistic adults who would like to connect with others in a similar situation. Whether you’ve recently had a diagnosis or have been navigating neurodiversity for years, you’re very welcome.

When and Where?

Chat MAIN will run online, so you can join us from the comfort of your own home. The first session takes place on:

Wednesday 29th October 2025


We’ll share full details with everyone who signs up.

Interested in joining?

We’d love to hear from you. If you’re interested in being part of Chat MAIN, please email us at:

info@iammain.org.uk

Spaces may be limited, so we encourage you to get in touch as soon as possible.

About MAIN

MAIN is a registered charity supporting autistic, neurodiverse, learning-disabled and/or people with complex needs, from age 5 into adulthood. We provide tailored services, guidance, and opportunities that make a real difference to individuals and their families. Chat MAIN is just one of the many ways we’re working to reduce isolation, build confidence, and support the neurodiverse community.

We can’t wait to welcome you to Chat MAIN!

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Paracetamol not linked to AUTISM diagnosis

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Paracetamol and Autism: What Does the Evidence Really Say?

Recent headlines have reignited public concern over claims linking paracetamol use during pregnancy to autism in children. As a charity supporting autistic, neurodiverse, learning disabled, and/or complex needs children and young adults, we know how distressing these claims can be for families and carers.

We were recently invited to speak on Hits Radio to respond to these concerns and here, we want to share a clear, evidence-based summary of what’s really known.

Where did this claim come from?

The renewed concern began after a political statement in the U.S. linked the use of paracetamol (also known as acetaminophen or Tylenol) during pregnancy to autism. Media reports quickly followed, and confusion spread online and among families.

Understandably, many parents are worried. But it’s crucial to separate scientific evidence from speculation.

What does the research say?

Some earlier studies suggested a possible association between prenatal paracetamol use and autism or ADHD. However, these studies often had important limitations, such as relying on parents’ memory, lacking accurate dose or timing data, and failing to rule out other influencing factors (like genetics or the reasons why the medication was taken).

A major Swedish study published in 2024, involving over 2.4 million children, used more rigorous methods and found no evidence that paracetamol use in pregnancy causes autism, ADHD, or intellectual disability. This is currently one of the largest and most reliable studies on the topic.

Leading organisations including the World Health Organization (WHO), UK health authorities, and autism charities have stated that there is no conclusive evidence of a causal link.

Why do these claims matter?

Claims like this can:

  • Place unfair blame on mothers and pregnant people, leading to unnecessary guilt or shame.

  • Stigmatise autistic people by framing autism as something caused by a “mistake.”

  • Undermine trust in healthcare guidance, especially when managing pain, fever, or illness during pregnancy.

  • Distract from urgent priorities, such as better autism support, diagnosis, and inclusion.

We believe it’s vital to challenge narratives that promote fear over facts.

Our advice

If you are pregnant or planning a family, always follow advice from your GP or midwife. Paracetamol remains one of the safest options for pain relief in pregnancy when used as directed.

To our families and community: autism is not caused by parenting choices. The causes of neurodevelopmental conditions are complex and not fully understood, but what matters most is how we support autistic individuals to thrive.

We’re here for you

At MAIN, we’re committed to sharing trustworthy, accessible information. If you have questions or want to talk more about this topic, please get in touch.

Together, let’s stand up for truth, compassion, and inclusion.

SEN School Transport – need to know

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Understanding Changes in SEN School Transport – What You Need to Know

At MAIN, we are proud to support families, young people, and the professionals who work tirelessly to ensure children and young people with special educational needs (SEN) can access the support they need to thrive.

Over recent months, we area aware of many families who have shared concerns about changes or uncertainty surrounding SEN school transport, including cases where transport has been removed or replaced with a personal transport budget (PTB). These changes can understandably cause worry and disruption, particularly when routines and consistency are so vital for many of our children.

We want to take a moment to recognise the incredible work Education and Local Authorities do every day. From transport arrangements and short breaks to wider SEND services, many departments across the country are working under increasing pressure to meet growing demand with limited resources. We value these efforts and acknowledge how vital their work is in supporting our communities.

What Does the Law Say?

Children with special educational needs are entitled to free home-to-school transport up to the age of 16, if they meet certain criteria, including distance from school, mobility difficulties, or if their SEN or disability means they cannot reasonably be expected to walk to school.

This is a statutory duty under the Education Act (1996), and Local Authorities must provide suitable transport for eligible children of compulsory school age. For most children, this means up to the end of the academic year in which they turn 16.

In practice, this support should be part of a broader transition plan, developed in partnership with families, to prepare young people for life beyond school.

How MAIN Can Help

If your family is affected by these changes, please know you are not alone, and support is available. At MAIN, we are here to offer:

  • Advice and guidance on your child’s transport rights

  • Help with understanding decisions made by the Local Authority

  • Support in challenging decisions if you believe your child is being unfairly impacted

  • A listening ear when things feel overwhelming

We want to work with Local Authorities and families, not in opposition. Believing that the best outcomes come from collaboration, compassion, and clear communication.

Next Steps for Families

If your child is under 16 and you’ve been informed their transport is changing or ending, you may wish to:

  1. Request a written explanation of the decision from your Local Authority

  2. Check your child’s Education, Health and Care Plan (EHCP) to see if transport is mentioned

  3. Get in touch with us at MAIN for support and advice

Remember, any decision that impacts a child’s access to education is a serious one, and it’s okay to ask questions or challenge, if needed.

At MAIN, our mission is always to empower families and young people, and that includes making sure that your voice is heard and that your rights are respected.

We’re here to help you navigate these systems and stand alongside you every step of the way.

With care,
The MAIN Team

#TogetherRaisingSmiles

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Summer of FUN!

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Title: A Summer of Impact – Thank You to Our Incredible MAIN Staff!

As the summer holidays come to a close, we want to take a moment to shine a huge spotlight on the truly outstanding team here at MAIN.

Over the past six weeks, our dedicated staff have supported nearly 700 children and young people with special educational needs and disabilities (SEND) – including those who are autistic, neurodiverse, have learning disabilities and/or complex needs. This incredible work took place across our two main sites: the Finlay Cooper Centre and our Guisborough base.

Whether it was delivering structured play, engaging in sensory activities, supporting social interaction, or just being a calm and caring presence, our team have gone above and beyond every single day. The energy, compassion, and creativity they’ve poured into our summer provision has made a real difference for so many children and families.

From all of us at MAIN – thank you.
You’ve not only provided a safe, supportive environment for hundreds of children to thrive, but you’ve also helped create joyful summer memories for families who often find this time of year incredibly challenging.

We’re incredibly proud of everything our team stands for, and everything they’ve achieved this summer.

Here’s to continuing to support, empower and uplift our community.  #TogetherRaisingSmiles

#TeamMAIN #ThankYou #SENDsupport #AutismAwareness #Neurodiversity #MAINcharity #InclusionMatters

Great Achievement

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Celebrating Sam’s University Success!

We’re absolutely thrilled to celebrate an incredible milestone — Sam has graduated from Teesside University with a well-deserved 2:1 in History! His hard work, commitment, and passion for the past have all paid off, and we couldn’t be prouder of what he’s achieved.

Studying History is no easy feat — it takes deep thinking, critical analysis, and a real love for storytelling and understanding the world around us. Sam has shown all of that and more throughout his time at university.

Now, with his degree in hand, Sam is setting his sights on a future that connects his passion for history with his career goals. His dream? To work in a museum, where he can help bring the past to life for others, share knowledge, and continue learning every day.

We’re so excited to see where this next chapter takes him. With his enthusiasm, dedication, and love of history, we know he’ll be a fantastic asset to any museum team.

Congratulations, Sam — your future is looking bright, and we’re cheering you on every step of the way!

#TogetherRaisingSmiles

Thank You – Skipton Building Society

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A heartfelt thank you to Skipton Building Society for selecting MAIN as your Charity of Choice.
We are truly grateful for your generous donation of Body Socks, which will make a meaningful difference to the children we support. Your kindness and commitment to our cause are deeply appreciated and will have a lasting impact.

In the photo are Victoria from Skipton Building Society, Josh, Heather, the CEO of MAIN and Tristan, taken in our new Pathways to Independence area , a space dedicated to helping our young people build essential life skills in a supportive environment.

#TogetherRaisingSmiles

 

Autism Act (2009) Have Your Say

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Autism Act 2009 – Committees – UK Parliament

Be a part of the story, if you are an individual, group or parent, please use your voice,

lets make a world where every autistic person has the right to live a fulfilled and happy life.

 

The committee wants to hear your views. We welcome submissions from anyone with answers to the questions in the call for evidence. You can submit evidence until Monday 2 June 2025.

Read the call for evidence before submitting

Introduction

The Autism Act 2009 Committee in the House of Lords is looking into how well the Autism Act 2009 and the Government’s autism strategy are working.

As part of this, the Committee is holding a call for evidence asking for information and views from you. To allow as much time as possible for people to respond, the call for evidence is open for two months (a longer period than usual), until 2 June 2025.

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Post Diagnosis Support Service 2014 – 2025

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A Heartfelt Thank You as Our Post Diagnosis Service Transitions

Since 2014, MAIN has had the privilege of delivering the Post Diagnosis Support Service (PDSS), offering not just guidance, but a helping hand, a light at the end of what can often feel like a very dark tunnel. Most importantly, PDSS has stood for respect, understanding, and positivity; values we have always held at the heart of everything we do.

As of 1st June 2025, this vital service will be moving to a new provider.

Over the past 11 years, our dedicated PDSS team — Kimberley, Melissa, Philip, Katherine, Pippa, Lewis, Daisy and Stephen,  have directly supported more than a thousand individuals, along with their loved ones and professionals. Each of them brought compassion, expertise, and unwavering commitment to every person they supported.

To our autistic community: thank you. Thank you for the trust you placed in us, and for allowing us to be part of your journey. It has been a genuine honour.

At MAIN, we have always treated every individual as just that — an individual. That will never change. While the PDSS will now continue under different leadership, our passion for supporting the neurodivergent community remains stronger than ever.

We would also like to take this opportunity to wish our Durham autistic community the very best for the future.

If you have any enquiries about the Post Diagnosis Support Service after 31st May 2025, please contact:

Durham County Council
Commissioning Policy and Planning Officer
Adult and Health Services
Tel: 03000 268407

With heartfelt gratitude,
The MAIN Team

 

Parent / Carer Open Day May 20th May 2025 – 12 – 2pm 5 – 7pm

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You’re Invited! MAIN Open Day – Discover Our New Pathways to Independence

We are thrilled to invite all parents and carers to join us for a special Open Day at MAIN, where you’ll have the opportunity to explore our brand-new Pathways to Independence space.

Date: 20th May 2025
Time: 12:00pm – 2pm / 5pm – 7pm
Location: MAIN – TS3 6EN

Our Pathways to Independence is a fully adaptable and accessible learning environment designed to help young people build essential life skills with confidence and independence. From practicing daily living tasks to exploring vocational and social opportunities, the space has been thoughtfully developed to support every individual’s journey at their own pace.

During the Open Day, you’ll have the chance to:

  • Tour the new facility

  • Meet our experienced and supportive team

  • Learn about the personalised programmes we offer

  • Ask questions and get involved in shaping future activities

This is a great opportunity to see first-hand how MAIN is continuing to empower young people by creating inclusive and inspiring spaces that reflect real-life experiences.

Booking required – please email @ info@iammain.org.uk or call – 01642 608012

We can’t wait to welcome you.