Tag Archive for: Advice

MAIN Youth Panel

We need your help!

At MAIN, we are committed to a neuroinclusive approach, and we are creating a Youth Panel to help shape future projects and ensure the support we offer truly reflects the needs of the young people we work with.

We are looking for individuals aged 13–25 years who would be happy to volunteer and share their voice, give feedback, and help us decide where MAIN should focus its support.

If you are interested, please contact us at:
📧 info@iammain.org.uk
📞 01642 608012

We will get in touch to arrange an introductory meeting.

Thank you for helping us make MAIN the best it can be for neurodivergent young people.


Everyone is welcome – we look forward to meeting you!

MAIN Open Day Drop in Session

You’re Invited! MAIN Open Day –Come and Visit Us!

Join us for a calm, friendly drop‑in where you can:
✔ Explore our site
✔ Meet our staff team
✔ Learn more about our services and support
✔ Ask questions in a relaxed environment


📅 Date: Wednesday 25th March

🕐 Time: 1:00pm – 2:00pm

📍 Location:

MAIN – The Finlay Cooper Centre
Elizabeth Terrace, North Ormesby
TS3 6EN

📞 Contact: 01642 608012


Everyone is welcome – we look forward to meeting you!

Redcar Rangers in Action for Charity

Redcar Rangers coaches and chair are taking on the Hard Moors 55 on 21st March 2026, running from Guisborough Rugby Club to Helmsley!

Three team members are pushing themselves across this challenging course to raise funds for MAIN. 💛

We’d love your support!

Keep an eye out for fundraising details from John (Milky) to follow, every contribution counts! 🙌

Let’s show our Redcar Rangers spirit and help make a difference! ⚡

#RedcarRangers #HardMoors55 #CharityRun #Fundraising #CommunitySpirit #togetherraisingsmiles

The Hardmoors 55 is a 55 mile Ultramarathon running from Guisborough to Helmsley. The 55 mile race will take competitors through the North York Moors and the Cleveland Hills in quite possibly winter conditions. Do not underestimate this race!! The race contains over 2000metres of ascent and has a time limit of 16 hours.

Please follow the link if you are able to donate to this worthwhile challenge, supporting two amazing charities.

Hello! I’m raising £750 to Great North Children’s Hospital Foundation & Main Together Raising Smiles an autism charity. Here’s my JustGiving page, if you’d like to donate, please head to: https://www.justgiving.com/crowdfunding/john-morrill?utm_medium=CF&utm_source=WA

The race will start in Guisborough at the Rugby Club on Belmangate and finish at Helmsley Sports Club

Every child deserves the best possible education — SEND reform must help make that a reality.

Response to the Government’s SEND Reform Announcement

The Government published its long-awaited reforms to the SEND system. As a local charity supporting autistic, neurodiverse and learning disabled children and their families, MAIN recognises that change can bring both opportunity and uncertainty.

For many of the families we work alongside, uncertainty is not a small matter. Our parents and carers are already exhausted, navigating complex systems, advocating tirelessly for their children, and often fighting prolonged battles simply to secure the support that is legally required. Any proposed changes to the SEND framework will understandably increase anxiety for families who are already stretched beyond capacity.

We urge policymakers to carefully consider their audience before implementing reforms. Behind every policy decision are real children and real families who depend on stability, clarity and trust in the system designed to support them.

Education, Health and Care Plans (EHCPs) are not a luxury. They are not an optional extra. They are a legal entitlement, a statutory protection that ensures children and young people with additional needs receive the support necessary to access education safely, meaningfully and equitably.

Our children deserve the best possible education, one that recognises their strengths, meets their needs, and enables them to thrive. Their families deserve to be heard, respected, and meaningfully involved in any changes that affect them.

We call on the Government to:

Engage openly and transparently with families and frontline organisations.

Protect the legal rights and statutory protections currently afforded to children and young people with SEND.

Ensure that reforms strengthen, not weaken, accountability and access to support.

Prioritise early intervention and adequately funded services so families are not left in crisis.

Change must not come at the cost of children’s rights or families’ wellbeing. We stand ready to work constructively with decision-makers to ensure reforms deliver genuine improvement rather than additional barriers.

Our families deserve certainty.
Our children deserve opportunity.
Their rights must remain protected.

Win a FREE Personal Assistant (PA) Session at MAIN!

🌟 Win a FREE Personal Assistant (PA) Session at MAIN! 🌟

Sophie, a dedicated member of the MAIN team 💙, is raising funds to gift one lucky family a FREE Personal Support (PA) session at MAIN!

Our PA sessions are fully tailored to your child’s individual interests, strengths and preferences, delivering meaningful, person-centred support for autistic and neurodiverse children and young people, including those with learning disabilities.

🎉 One family will receive a session completely free of charge!

📅 The session will take place during the Easter holidays:
Friday 3 April 2026 – Friday 17 April 2026

⏳ Closing date for entries: 31st March 2026

To support Sophie’s fundraiser, you can:
💷 Drop off a cash donation at MAIN
🔗 Donate online via GoFundMe: https://gofund.me/2dd9bb782

To ensure complete transparency and fairness, the winner will be selected using a random number generator and the draw will be live streamed.

To enter your child into the draw:
📧 Email: snandrews@iammain.org.uk

📱 Text: 07736 925252
(Please include your child’s name)

Thank you for supporting Sophie and MAIN — and the very best of luck to everyone entering! 🍀💙

Chat MAIN – Online Support Group

Introducing Our New Online Support Group for Autistic Adults: Chat MAIN

We’re excited to announce the launch of Chat MAIN – a brand new, friendly and supportive online group for autistic and neurodiverse adults, starting on the 29th October 2025.

Chat MAIN is a space to connect, share experiences, and build friendships in a relaxed, understanding environment. Whether you’re looking to meet others with similar experiences, find a sense of community, or simply enjoy a friendly chat, this group is for you.

Chat MAIN Logo

What is Chat MAIN?

Chat MAIN is an informal, online meet-up group designed specifically for autistic adults. We know that navigating adulthood with autism or other neurodivergent experiences can sometimes feel isolating. That’s why this group offers a safe and welcoming space to talk, listen, and feel supported.

The group will be hosted by friendly MAIN team members who understand the importance of creating a calm and respectful atmosphere. You can choose how much (or how little) you want to join in, there’s no pressure to talk if you’d prefer just to listen.

Who is it for?

This group is open to autistic adults who would like to connect with others in a similar situation. Whether you’ve recently had a diagnosis or have been navigating neurodiversity for years, you’re very welcome.

When and Where?

Chat MAIN will run online, so you can join us from the comfort of your own home. The first session takes place on:

Wednesday 29th October 2025


We’ll share full details with everyone who signs up.

Interested in joining?

We’d love to hear from you. If you’re interested in being part of Chat MAIN, please email us at:

info@iammain.org.uk

Spaces may be limited, so we encourage you to get in touch as soon as possible.

About MAIN

MAIN is a registered charity supporting autistic, neurodiverse, learning-disabled and/or people with complex needs, from age 5 into adulthood. We provide tailored services, guidance, and opportunities that make a real difference to individuals and their families. Chat MAIN is just one of the many ways we’re working to reduce isolation, build confidence, and support the neurodiverse community.

We can’t wait to welcome you to Chat MAIN!

Paracetamol not linked to AUTISM diagnosis

Paracetamol and Autism: What Does the Evidence Really Say?

Recent headlines have reignited public concern over claims linking paracetamol use during pregnancy to autism in children. As a charity supporting autistic, neurodiverse, learning disabled, and/or complex needs children and young adults, we know how distressing these claims can be for families and carers.

We were recently invited to speak on Hits Radio to respond to these concerns and here, we want to share a clear, evidence-based summary of what’s really known.

Where did this claim come from?

The renewed concern began after a political statement in the U.S. linked the use of paracetamol (also known as acetaminophen or Tylenol) during pregnancy to autism. Media reports quickly followed, and confusion spread online and among families.

Understandably, many parents are worried. But it’s crucial to separate scientific evidence from speculation.

What does the research say?

Some earlier studies suggested a possible association between prenatal paracetamol use and autism or ADHD. However, these studies often had important limitations, such as relying on parents’ memory, lacking accurate dose or timing data, and failing to rule out other influencing factors (like genetics or the reasons why the medication was taken).

A major Swedish study published in 2024, involving over 2.4 million children, used more rigorous methods and found no evidence that paracetamol use in pregnancy causes autism, ADHD, or intellectual disability. This is currently one of the largest and most reliable studies on the topic.

Leading organisations including the World Health Organization (WHO), UK health authorities, and autism charities have stated that there is no conclusive evidence of a causal link.

Why do these claims matter?

Claims like this can:

  • Place unfair blame on mothers and pregnant people, leading to unnecessary guilt or shame.

  • Stigmatise autistic people by framing autism as something caused by a “mistake.”

  • Undermine trust in healthcare guidance, especially when managing pain, fever, or illness during pregnancy.

  • Distract from urgent priorities, such as better autism support, diagnosis, and inclusion.

We believe it’s vital to challenge narratives that promote fear over facts.

Our advice

If you are pregnant or planning a family, always follow advice from your GP or midwife. Paracetamol remains one of the safest options for pain relief in pregnancy when used as directed.

To our families and community: autism is not caused by parenting choices. The causes of neurodevelopmental conditions are complex and not fully understood, but what matters most is how we support autistic individuals to thrive.

We’re here for you

At MAIN, we’re committed to sharing trustworthy, accessible information. If you have questions or want to talk more about this topic, please get in touch.

Together, let’s stand up for truth, compassion, and inclusion.

Great Achievement

Celebrating Sam’s University Success!

We’re absolutely thrilled to celebrate an incredible milestone — Sam has graduated from Teesside University with a well-deserved 2:1 in History! His hard work, commitment, and passion for the past have all paid off, and we couldn’t be prouder of what he’s achieved.

Studying History is no easy feat — it takes deep thinking, critical analysis, and a real love for storytelling and understanding the world around us. Sam has shown all of that and more throughout his time at university.

Now, with his degree in hand, Sam is setting his sights on a future that connects his passion for history with his career goals. His dream? To work in a museum, where he can help bring the past to life for others, share knowledge, and continue learning every day.

We’re so excited to see where this next chapter takes him. With his enthusiasm, dedication, and love of history, we know he’ll be a fantastic asset to any museum team.

Congratulations, Sam — your future is looking bright, and we’re cheering you on every step of the way!

#TogetherRaisingSmiles

Thank You – Skipton Building Society

A heartfelt thank you to Skipton Building Society for selecting MAIN as your Charity of Choice.
We are truly grateful for your generous donation of Body Socks, which will make a meaningful difference to the children we support. Your kindness and commitment to our cause are deeply appreciated and will have a lasting impact.

In the photo are Victoria from Skipton Building Society, Josh, Heather, the CEO of MAIN and Tristan, taken in our new Pathways to Independence area , a space dedicated to helping our young people build essential life skills in a supportive environment.

#TogetherRaisingSmiles

 

Autism Act (2009) Have Your Say

Autism Act 2009 – Committees – UK Parliament

Be a part of the story, if you are an individual, group or parent, please use your voice,

lets make a world where every autistic person has the right to live a fulfilled and happy life.

 

The committee wants to hear your views. We welcome submissions from anyone with answers to the questions in the call for evidence. You can submit evidence until Monday 2 June 2025.

Read the call for evidence before submitting

Introduction

The Autism Act 2009 Committee in the House of Lords is looking into how well the Autism Act 2009 and the Government’s autism strategy are working.

As part of this, the Committee is holding a call for evidence asking for information and views from you. To allow as much time as possible for people to respond, the call for evidence is open for two months (a longer period than usual), until 2 June 2025.