Tag Archive for: Advice

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Chat MAIN – Online Support Group

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Introducing Our New Online Support Group for Autistic Adults: Chat MAIN

We’re excited to announce the launch of Chat MAIN – a brand new, friendly and supportive online group for autistic and neurodiverse adults, starting on the 29th October 2025.

Chat MAIN is a space to connect, share experiences, and build friendships in a relaxed, understanding environment. Whether you’re looking to meet others with similar experiences, find a sense of community, or simply enjoy a friendly chat, this group is for you.

Chat MAIN Logo

What is Chat MAIN?

Chat MAIN is an informal, online meet-up group designed specifically for autistic adults. We know that navigating adulthood with autism or other neurodivergent experiences can sometimes feel isolating. That’s why this group offers a safe and welcoming space to talk, listen, and feel supported.

The group will be hosted by friendly MAIN team members who understand the importance of creating a calm and respectful atmosphere. You can choose how much (or how little) you want to join in, there’s no pressure to talk if you’d prefer just to listen.

Who is it for?

This group is open to autistic adults who would like to connect with others in a similar situation. Whether you’ve recently had a diagnosis or have been navigating neurodiversity for years, you’re very welcome.

When and Where?

Chat MAIN will run online, so you can join us from the comfort of your own home. The first session takes place on:

Wednesday 29th October 2025


We’ll share full details with everyone who signs up.

Interested in joining?

We’d love to hear from you. If you’re interested in being part of Chat MAIN, please email us at:

info@iammain.org.uk

Spaces may be limited, so we encourage you to get in touch as soon as possible.

About MAIN

MAIN is a registered charity supporting autistic, neurodiverse, learning-disabled and/or people with complex needs, from age 5 into adulthood. We provide tailored services, guidance, and opportunities that make a real difference to individuals and their families. Chat MAIN is just one of the many ways we’re working to reduce isolation, build confidence, and support the neurodiverse community.

We can’t wait to welcome you to Chat MAIN!

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Paracetamol not linked to AUTISM diagnosis

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Paracetamol and Autism: What Does the Evidence Really Say?

Recent headlines have reignited public concern over claims linking paracetamol use during pregnancy to autism in children. As a charity supporting autistic, neurodiverse, learning disabled, and/or complex needs children and young adults, we know how distressing these claims can be for families and carers.

We were recently invited to speak on Hits Radio to respond to these concerns and here, we want to share a clear, evidence-based summary of what’s really known.

Where did this claim come from?

The renewed concern began after a political statement in the U.S. linked the use of paracetamol (also known as acetaminophen or Tylenol) during pregnancy to autism. Media reports quickly followed, and confusion spread online and among families.

Understandably, many parents are worried. But it’s crucial to separate scientific evidence from speculation.

What does the research say?

Some earlier studies suggested a possible association between prenatal paracetamol use and autism or ADHD. However, these studies often had important limitations, such as relying on parents’ memory, lacking accurate dose or timing data, and failing to rule out other influencing factors (like genetics or the reasons why the medication was taken).

A major Swedish study published in 2024, involving over 2.4 million children, used more rigorous methods and found no evidence that paracetamol use in pregnancy causes autism, ADHD, or intellectual disability. This is currently one of the largest and most reliable studies on the topic.

Leading organisations including the World Health Organization (WHO), UK health authorities, and autism charities have stated that there is no conclusive evidence of a causal link.

Why do these claims matter?

Claims like this can:

  • Place unfair blame on mothers and pregnant people, leading to unnecessary guilt or shame.

  • Stigmatise autistic people by framing autism as something caused by a “mistake.”

  • Undermine trust in healthcare guidance, especially when managing pain, fever, or illness during pregnancy.

  • Distract from urgent priorities, such as better autism support, diagnosis, and inclusion.

We believe it’s vital to challenge narratives that promote fear over facts.

Our advice

If you are pregnant or planning a family, always follow advice from your GP or midwife. Paracetamol remains one of the safest options for pain relief in pregnancy when used as directed.

To our families and community: autism is not caused by parenting choices. The causes of neurodevelopmental conditions are complex and not fully understood, but what matters most is how we support autistic individuals to thrive.

We’re here for you

At MAIN, we’re committed to sharing trustworthy, accessible information. If you have questions or want to talk more about this topic, please get in touch.

Together, let’s stand up for truth, compassion, and inclusion.

Great Achievement

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Celebrating Sam’s University Success!

We’re absolutely thrilled to celebrate an incredible milestone — Sam has graduated from Teesside University with a well-deserved 2:1 in History! His hard work, commitment, and passion for the past have all paid off, and we couldn’t be prouder of what he’s achieved.

Studying History is no easy feat — it takes deep thinking, critical analysis, and a real love for storytelling and understanding the world around us. Sam has shown all of that and more throughout his time at university.

Now, with his degree in hand, Sam is setting his sights on a future that connects his passion for history with his career goals. His dream? To work in a museum, where he can help bring the past to life for others, share knowledge, and continue learning every day.

We’re so excited to see where this next chapter takes him. With his enthusiasm, dedication, and love of history, we know he’ll be a fantastic asset to any museum team.

Congratulations, Sam — your future is looking bright, and we’re cheering you on every step of the way!

#TogetherRaisingSmiles

Thank You – Skipton Building Society

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A heartfelt thank you to Skipton Building Society for selecting MAIN as your Charity of Choice.
We are truly grateful for your generous donation of Body Socks, which will make a meaningful difference to the children we support. Your kindness and commitment to our cause are deeply appreciated and will have a lasting impact.

In the photo are Victoria from Skipton Building Society, Josh, Heather, the CEO of MAIN and Tristan, taken in our new Pathways to Independence area , a space dedicated to helping our young people build essential life skills in a supportive environment.

#TogetherRaisingSmiles

 

Autism Act (2009) Have Your Say

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Autism Act 2009 – Committees – UK Parliament

Be a part of the story, if you are an individual, group or parent, please use your voice,

lets make a world where every autistic person has the right to live a fulfilled and happy life.

 

The committee wants to hear your views. We welcome submissions from anyone with answers to the questions in the call for evidence. You can submit evidence until Monday 2 June 2025.

Read the call for evidence before submitting

Introduction

The Autism Act 2009 Committee in the House of Lords is looking into how well the Autism Act 2009 and the Government’s autism strategy are working.

As part of this, the Committee is holding a call for evidence asking for information and views from you. To allow as much time as possible for people to respond, the call for evidence is open for two months (a longer period than usual), until 2 June 2025.

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Post Diagnosis Support Service 2014 – 2025

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A Heartfelt Thank You as Our Post Diagnosis Service Transitions

Since 2014, MAIN has had the privilege of delivering the Post Diagnosis Support Service (PDSS), offering not just guidance, but a helping hand, a light at the end of what can often feel like a very dark tunnel. Most importantly, PDSS has stood for respect, understanding, and positivity; values we have always held at the heart of everything we do.

As of 1st June 2025, this vital service will be moving to a new provider.

Over the past 11 years, our dedicated PDSS team — Kimberley, Melissa, Philip, Katherine, Pippa, Lewis, Daisy and Stephen,  have directly supported more than a thousand individuals, along with their loved ones and professionals. Each of them brought compassion, expertise, and unwavering commitment to every person they supported.

To our autistic community: thank you. Thank you for the trust you placed in us, and for allowing us to be part of your journey. It has been a genuine honour.

At MAIN, we have always treated every individual as just that — an individual. That will never change. While the PDSS will now continue under different leadership, our passion for supporting the neurodivergent community remains stronger than ever.

We would also like to take this opportunity to wish our Durham autistic community the very best for the future.

If you have any enquiries about the Post Diagnosis Support Service after 31st May 2025, please contact:

Durham County Council
Commissioning Policy and Planning Officer
Adult and Health Services
Tel: 03000 268407

With heartfelt gratitude,
The MAIN Team

 

Parent / Carer Open Day May 20th May 2025 – 12 – 2pm 5 – 7pm

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You’re Invited! MAIN Open Day – Discover Our New Pathways to Independence

We are thrilled to invite all parents and carers to join us for a special Open Day at MAIN, where you’ll have the opportunity to explore our brand-new Pathways to Independence space.

Date: 20th May 2025
Time: 12:00pm – 2pm / 5pm – 7pm
Location: MAIN – TS3 6EN

Our Pathways to Independence is a fully adaptable and accessible learning environment designed to help young people build essential life skills with confidence and independence. From practicing daily living tasks to exploring vocational and social opportunities, the space has been thoughtfully developed to support every individual’s journey at their own pace.

During the Open Day, you’ll have the chance to:

  • Tour the new facility

  • Meet our experienced and supportive team

  • Learn about the personalised programmes we offer

  • Ask questions and get involved in shaping future activities

This is a great opportunity to see first-hand how MAIN is continuing to empower young people by creating inclusive and inspiring spaces that reflect real-life experiences.

Booking required – please email @ info@iammain.org.uk or call – 01642 608012

We can’t wait to welcome you.

 

Mental Health Week 2025

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Mental Health Awareness Week 2025 – We’re Here to Help

May 12–18, 2025

This week marks Mental Health Awareness Week 2025, and this year’s theme, ‘Community’ is one that truly resonates with us here at MAIN.

Being part of a supportive, understanding community is vital to mental health and wellbeing. Whether it’s a friendly conversation, access to shared resources, or simply knowing you’re not alone, community creates connection and connection is at the heart of recovery, resilience, and wellbeing.

At MAIN, we are proud to stand alongside individuals and families navigating life’s challenges. Our mission is to support people with neurodiverse conditions and mental health needs, and we believe in the power of community to uplift and empower. This week is a reminder that nobody should have to face their struggles in isolation.

We’re Here to Help.

Throughout this week and beyond, we are committed to raising awareness, promoting understanding, and offering our support to those who need it most. Whether you’re seeking information, resources, or someone to talk to, MAIN is here for you.

Please visit our website at www.iammain.org.uk to learn more about what we do and how we can support you or your loved ones.

Let’s keep the conversation going. Let’s build a stronger, kinder, more connected community.
#togetherraisingsmiles

 

Mental Health Week 2025

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Mental Health Awareness Week 2025 – We’re Here to Help

May 12–18, 2025

This week marks Mental Health Awareness Week 2025, and this year’s theme, ‘Community’ is one that truly resonates with us here at MAIN.

Being part of a supportive, understanding community is vital to mental health and wellbeing. Whether it’s a friendly conversation, access to shared resources, or simply knowing you’re not alone, community creates connection and connection is at the heart of recovery, resilience, and wellbeing.

At MAIN, we are proud to stand alongside individuals and families navigating life’s challenges. Our mission is to support people with neurodiverse conditions and mental health needs, and we believe in the power of community to uplift and empower. This week is a reminder that nobody should have to face their struggles in isolation.

We’re Here to Help.

Throughout this week and beyond, we are committed to raising awareness, promoting understanding, and offering our support to those who need it most. Whether you’re seeking information, resources, or someone to talk to, MAIN is here for you.

Please visit our website at www.iammain.org.uk to learn more about what we do and how we can support you or your loved ones.

Let’s keep the conversation going. Let’s build a stronger, kinder, more connected community.
#togetherraisingsmiles

 

Thank you

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As my internship at MAIN comes to a close, I find myself reflecting on the incredibly rewarding experience I’ve had over the past few months. It’s been a time of personal and professional growth, and I feel incredibly grateful for the opportunity to contribute and learn alongside such an inspiring team.

During my time as an Administrative and Marketing Intern, I had the privilege of gaining a comprehensive understanding of the inner workings of both the administrative and marketing departments. From organising schedules and assisting with social media campaigns to learning about the strategic aspects of non-profit management, every day brought new insights and challenges.

One of the most valuable aspects of my experience was the chance to work closely with Kimberley and Max, one of the trustees. Their mentorship and guidance were invaluable. They always took the time to answer questions, provide feedback, and share their expertise. Their approachability and willingness to help made it easy to feel supported throughout my internship.

I also want to extend my sincere appreciation to the management team for covering my travel expenses during the internship. This gesture allowed me to focus entirely on the experience and truly immerse myself in the work.

The environment at MAIN is unique in its commitment to fostering a culture of inclusion, diversity, and care for children with special abilities. Being part of such a compassionate and driven team has broadened my perspective on the non-profit sector and inspired me to continue pursuing a career in this field. I’ve witnessed first hand how a community can come together to make a real difference in the lives of others, and that’s something I will carry with me throughout my career.

In closing, I want to express my deepest thanks to everyone at MAIN for making this internship an unforgettable experience. The skills, knowledge, and friendships I’ve gained will stay with me as I move forward in my career. I’m excited to stay in touch and I hope that our paths will cross again in the future.

Thank you once again, and I wish the entire team at MAIN continued success in all the amazing work they do.

Intern, Teesside University, Middlesbrough

 

To find out more about our internships and volunteering opportunities, please email info@iammain.org.uk